20.7.2013 Sunday

Morning and it's Sunday ! 

Today wake up earlier . 

These few days I cough until my lung want come out dy . 

Haizzz , don't know why will cough , next Tuesday going to meet with doctor le . 

Today afternoon going to sg. Besar with my cousin . Tomorrow going back to kl again .

Time pass so fast ... 

September is chai choo sis wedding . 

She busy prepare with her wedding dinner . 

Yesterday hock Yam bro have download the triumph in the sky 2 and we watched together cause no tv show to watch . 

After that . Brother and sister said want eat cheese cake , then we went to bought some ingredient to make a orea cheese cake . 

Today's the cake must be very delicious . 

Before this , I want to make this orea cheese cake dy . But my parent don't allow me to do this . 

I love to bake cake , I love to see when people happy when tasting my cake . 

But I don't know why they will ignore me in baking . 

My dream is to open a own bakery .

Whatever , I won't give up in baking . 

Because I love baking !!! 

                     Unbaked orea cheese cake 

                  Unbaked orea cheese cake 

19.7.13 Ipoh day

Today's morning went Ipoh from teluk intan . 

After 2 hours , reached Medan Kidd bus station Ipoh . 

This is the first time I visit Ipoh . 

After reached here , I take town bus to KPJ specialist hospital Ipoh . 

It's cost RM 1.20 only ! 

If take taxi sure very expansive . 

11.30a.m we reached the hospital . 

After that , we find the clinic and register . 

But the doctor haven't come yet . 

So , maybe need to wait until 2pm . 

It's 12pm , I need find somewhere to take my lunch . 

I hope that i can go Medan Kidd bus station earlier . Because the last bus is 6pm . 

Beside the hospital is Ipoh parade . 

The ipoh town is so big , and sometimes got a little bit traffic jam . 

Hope I can meet with doctor earlier . 

Just waiting ..............

Thursday - Perak day

Tonight going to teluk intan with hock yam bro . 

Tomorrow morning going to Ipoh specialist hospital with mummy . 

Going to meet the neurology doctor to get second opinion for my disease . 

Because yesterday have meet doctor Kong , 

And he said he dont think i need to do radiotherapy now . 

Cause my tumor was grow slowly and there are no any symptom . 

And because of I'm too young and the radiotherapy is too hurt . 

But oncology doctor , Pro Fuad mentioned i should go for the radiotherapy to make my tumor smaller . 

Both of them have different opinion . 

So , shun keow sis ask me going to take a second opinion . 

Yesterday , I called to Ipoh specialist hospital to make an appointment for tomorrow . 

So , I sure cant go back Kuantan this week . 

Tomorrow morning going down Ipoh and after meet the doctor , I will going to sg. Besar to meet with shun keow sis . Then next Monday coming pj with sis again . 

Tuesday need to meet with Doctor Kong and Pro Fuad to hear their decision . 

Cause next Thursday the radiotherapy department planning to make a helmet for me . 

So , next Tuesday their decision will confirm is it I will go for Thursday . 

If the doctor from Ipoh specialist hospital say I no need do the radiotherapy , then I can back kuantan dy . 

But every year I still need to go do checkup . 

Tired and boring without school day .........

Wednesday 10.7.2013

Today's Wednesday . 

Going to art class today . 

Today sure very very busy with all my homework and note . 

Time pass fast , next Tuesday going to kl and Wednesday going to hospital meet with doctor . 

Fresh Saturday

Today no school . 

Morning 7.00 am mother bring me went taman gelora jog . 

Then , we meet with my aunts . Mother chat with my aunt about my situation of that's time . 

After 8.30 am , we went to have our breakfast . Then mummy went to buy some vegetable . 

After went back home , I do all the housework until afternoon . 

Then , I have a short sleep at afternoon . 

I dream about my brother going to marry !

Haha , it's so surprise ! 

After that I wake up , it's doesn't true . But soon .... 

Then is time to do all my note that teacher gave . 

I fell like long long time I dint go school for study already . 

After I sick , always went kl and not around at Kuantan . 

I also don't know how long that I missed my class dy . 

I scare I can't handle my studies . 

Because next year will going to take spm . 

But if I just going to do radiotherapy for one months , 

I think it's no need to stopped my school . 

It's so important to take my spm exam . 

If I dint have the certificate , I can't continue study in future . 

Yesterday , teacher said she haven't change my name list to the other class .

Because I apply for art class . 

Before this , doctor said maybe after this I can't speak well cause of they will cut my blood vessel and also voice box . That time I'm very scare about my future . 

Then tee hong bro told me that maybe I can take design after this . 

Before I know my disease , I mind to take business admin in future , I also wan follow my brother at singapore . But I know that's is impossible now . 

I applies for change to art class because of I can't solve the add math and account question easily . 

It's quit hard . Cause now I have to go kl anytime , so it's not possible to take tuition at here , I also impossible have time to find teacher and ask for that . 

So , I think if I choose art class , I can draw at house and my sister also can help me in this . 

These few days when I stay at Kuantan , I have to attend to school . 

I want to learn more . If not i really don't know  how I going to take exam on next year . 

What I can do is add more oil than my friends . 

Because I not same as them . 

It's time to sleep , good night everyone . 

Have a sweet dream . 

Fresh Friday

Today really need go school le........

Yesterday overtired so mother ask me don't go to school . 

It's seem like first time I go to school for this year ,

I have long long time absent for my class . 

I think many people ready forgot me . 

Some teacher ask me is it u still student here .. Haha 

Today afternoon going to meet with teacher Jau at star city . 

Today not bringing any book because too heavy . 

That's all !!! 

Bye ! 

惊喜

星期一见了肿瘤医生，看了我的切片报告。

报告显示并不是神经内分泌癌而是副神经内瘤。

医生说我必须做28次电疗来把那粒瘤变小 。 

我也只有一次机会来清除这粒瘤。

那天医生说故事还没说完，还没 the end . 

今早见了鼻喉医生，他跟妈咪解释切片手术的报告 。 

医生说我的并不至于恶性 。 

如果我的瘤转移至别的地方，那就是恶性是癌症。

可是我的还没扩善 ，属于良性 。

可是电疗是为了让我的瘤缩小，不要长至头颅 。 

回关丹的路上，接到了鼻喉医生的电话。 

他要我回去医院做多一个检查 ，

有可能不用做电疗。

因为我还年轻，电疗很伤身 。 

所以是否要做电疗还不知道 。 

上网查过副神经内瘤， 

多数为良性， 10%为恶性 。 

多数发生在青壮年的身上。

以手术和放射治疗来清除瘤 。 

一旦病情恶化，易转移至淋巴结 ， 肝， 肺， 肾 等部位。

所以说别高兴得太早 ！ 

以后的路还很遥远 。 

肿瘤科医生给我一个月后的预约日期。

因为手术的伤口未痊愈，所以不能及时做电疗。

电疗前，医生会安排我做MRI 和 CT 。 

所以， 我要好好利用这一个月的时间来养生。

希望一个月后的检查结果会有奇迹 。 

今天下午才抵达关丹 ，

这半年我一直都吉隆坡-关丹 两回跑 。 

真的好累 ！ 

多么希望这一切能够尽早结束 。 

明早准备去上课 。 

这半年来我都没去过学校上课 ，

不知道明年spm 怎么考啊 。。。 

我不想慢别人一步 。。

没办法。。。。 

我要完成我的梦想 !! 

Yesterday 1.7.2013 Paraganglioma

Yesterday morning went to hospital with parents and shun keow sis .

Meet with Pro Fuad that's from oncology . 

Then Pro read my report , he said i need to do radiotheraphy to kill die the tumor . 

Mine disease was not neuroendrocrine carcinoma tumor , but is Paraganglioma . 

My cancer was stage 2th . But my tumor grow slowly . 

I can't use chemotherapy because it only can make my tumor become smaller but can't kill it die . 

So , radiotherapy is the only method for me . 

Doctor said I just can do one times of radiotherapy , if this time radiotherapy can't kill die the cancer cell of tumor , I doesn't have second chance . If after this my neck here come again , I can't do any surgery , chemotherapy and radiotherapy . 

Before this i went to jb meet with a doctor from Guangzhou , china . 

I gave my report to let him see , he said i can choose go to Guangzhou there do a therapy that's call branchy treatment . And he said he will put some metal ball inside my body , the metal ball will kill die the tumor and that place won't come again . But when I go custom , I need to take some letter to the worker there . And if I do that therapy , after this i can't pregnant because the metal ball will give radiation to the baby . 

Yesterday I also got talk about what the china doctor topic with my doctor . 

But he said their hospital also got this therapy but I not comfortable to use this method because my tumor very near my brain . So , I just can give up with this therapy . 

Shun keow sis also got ask Pro Fuad about how was the progress of the radiotherapy . 

Every radiotherapy takes ten minutes , I just need to lend down for ten minutes . The progress is seem like do MRI . Before and after the radiotherapy doesn't need take any medicine and injection . After the radiotherapy , my mouth must be dry out , so Pro Fuad recommend me go to find a dentist to see wether can put some medicine for my dry mouth . Hairs fall is just left side near the ear and right side a little bit . I think radiotherapy is better than chemotherapy . 

Doctor have give me an appointment after one month , 

But tmr I still need to meet with Doctor Kong because got some form need his help . 

After this will go back kuantan . 

17/7 I still need come kl again cause I need go hospital do a x-ray Telan . 

Today morning I just bring parents went pasar sentosa ate breakfast and bought vegetable . 

Today I'm free ! 

Just sit at house and do my "homework" !